AUGUST 5TH 2013
Lovely big musical parcel arrived this morning. Request for two children from their music therapist to be able to have continuation with their families between her visits. Knowing how much Megan loved her sessions and what joy music gives the children I love this parcel. The gathering drum is amazing, we love the sound and the child uses it for communication ,amazing. Always loved the wind chimes and ocean drum too and they were Megan's favourite's along with the shiny tambourine. So just an update for everyone what is going on in the Fund. Hope everyone has a wonderful week
MEGAN'S FLUTTERBY FUND
WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .
We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.
Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the child's ability, but can make such a difference to the child's everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as an ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.
We hope you like our Blog and please feel free to post your comments and Thank you for taking the time to look .
Gisela Bell & Anna Bell Now Lyman
CHARITY TAX REGISTERED.
We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.
Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the child's ability, but can make such a difference to the child's everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as an ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.
We hope you like our Blog and please feel free to post your comments and Thank you for taking the time to look .
Gisela Bell & Anna Bell Now Lyman
CHARITY TAX REGISTERED.
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