"MEGAN'S FLUTTERBY FUND": BEING POSITIVE

MEGAN'S FLUTTERBY FUND

WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .

We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.

Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the child's ability, but can make such a difference to the child's everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as an ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.

We hope you like our Blog and please feel free to post your comments and Thank you for taking the time to look .

Gisela Bell & Anna Bell Now Lyman

CHARITY TAX REGISTERED.

06/10/2013

BEING POSITIVE

Hi everyone,

Sadly many of the posts can not be viewed as someone has seen to report our site as abusive . I am trying to think positive and that this is not the case and unfortunately we have just had a malfunction because I have no understanding of anyone that would do this type of thing in helping sick children . Either way it is quite upsetting because all of the events and the great pictures of all the wonderful people who are helping us and our beautiful children can not be seen by you or me .
On a good note though I have been able to get back in and start re posting but it is going to be a long slog and maybe all out of sync.
I am thinking maybe to start all over and create a new blog altogether.
I hope you will bear with us but we will be continuing to raise funds for our beautiful children despite this happening and will be posting all our up to date things.