"MEGAN'S FLUTTERBY FUND": OUR DUSTON LONG BOAT FAMILY DAY

MEGAN'S FLUTTERBY FUND

WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .

We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.

Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the child's ability, but can make such a difference to the child's everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as an ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.

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Gisela Bell & Anna Bell Now Lyman

CHARITY TAX REGISTERED.

24/08/2014

OUR DUSTON LONG BOAT FAMILY DAY

HI EVERYONE,

We had the most amazing day at Duston Longboat Fun Day. I have so many people to thank for making it such a fantastic day. Firstly Jan and Tony for hosting the event. Wonderful friends that helped us set up and run the stalls. All the wonderful people that gave their time to make it a great day. Janet Evans Michelle Laurie Olive Flynn Mo and Gill. Tony Flux tarot readings. Tracy's Band , Laurence and Partner ,Richard &Tony The Richtones for stepping in for the music this eve...ning. Claire Louise Patchett for baking the cakes. Roger and Jenny Conroy for the children's activities. Beckie Sanderson for her fantastic Face Painting. Bee Chauhan for delish samosas Kevin Harris for doing the BBQ Everyone that donated tombola raffle and so much more to help us raise funds. It has been a fantastic get together of so many lovely and generous people that helped us raise a TOTAL OF £1120 .

The day was really special and having some of the children there too Isabelle Jasmine and Rachel and a surprise that was so wonderful a first meeting of one of my long time Hydranencephaly family Kathy York For so long we have chatted on FB and today there she was with Gabby York and Edward It was just so lovely today of all days on Megan's Angel Anniversary. It hasn't been a sad day surrounded by so many wonderful family ,friends celebrating our Megan's life. Thank you a million times over everyone with out each and everyone of you we would not be able to do what we do. Love and hugs from us all and kisses to all our very special children XXXXXX