WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .

We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.
Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the childs ability, but can make such a difference to the childs everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as a ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.

We hope you like our Blog and please feel free to post your comments and Thankyou for taking the time to look .

Gisela & Anna Bell x


INTO 2019

Hi Everyone ,

We are now well  into the New Year February and snowdrops all blooming and Spring bulbs all above the ground. Still cold but signs of new life all around.

We would like to thank everyone that supported us through 2018 without you we could not help the children and families that struggle for special equipment.

I have already been asked if we are hosting another party this year and hopefully yes we will but will be in touch nearer a time .

Wishing you all the best for the future year
 from All of us at

Megan's Flutterby Fund



Hi Everyone,

Well the summer is over and now into the autumn months and soon winter. Only 4 weeks to Christmas so lots of preparations and very quickly it will be lots of excited children waiting for that magical day when Santa arrives.

It was a sad time for us all here at the fund with the passing of Natalie one of our trustees. Natalie's family requested the donations made at her funeral were passed on to Megan's Fund which totalled to £251.00  which we thank them for. We all know that Natalie would be happy about that. We will miss her so much .She was on board with us  at the very beginning. God Bless Nat you will always be with us.

We have some more people to thank for donations made.

Firstly THE LADIES AT SUNDAY TEAS AT ST LUKES DUSTON who presented us with a cheque for £100. Many thanks for your support ladies  so kind of you to think of us.X

Next we would like to thank our ALI HARPER AND ALL THE MEMBERS OF GLOBAL HYDRANENCEPHALY FOUNDATION USA. They awarded us The ^ Brayden Alexander ^ Memorial Grant for Volunteerism of $500.  We have been friends and members of the group for many years as Megan had this condition and found the support and information invaluable to us. Despite the hundreds of miles that separate us all firm friendships and love have been forge to span across the years .One wonderful thing that the internet can take some credit for.
Thank you to Our Hydranencephaly  Family for your support. It's amazing that our special Angels  memories go on to help other children and families  Love and hugs to you all at the foundation  and to all the families 
Ali and Brayden.
Many thanks to Everyone Much Love from Everyone at M.F.F. xxx



Hi Everyone,

Our update for over the Summer months is one of sadness. On July 24th our dear friend and trustee  Natalie Marsh lost her fight with cancer. The sadness that filled our hearts was monumental. Natalie was not only a trustee but Anna's  lifelong best friend, Megan's Godmother and a wonderful fun loving generous lady. Her loss will be felt by many for a long time and our thoughts and love  surround her two sons Nathan and Jarred, partner Darren and her family in the months ahead.
We will miss her so much. Natalie was on board right at the beginning of the start of Megan's Flutterby  Fund and was the quiet fund trustee, raising funds for the gifts for the children for the parties and attending out of her busy life schedule to help at functions and just generally muck in wherever we needed help. Rest in Peace Natalie you will always be close in our hearts forever.

Our other news is to say a huge thank you to Donna Marriott for her donation of £344.78p.
Donna started the rock painting off in Duston.  LOVE ON THE ROCKS DUSTON.  Donna and other artists painted rocks that could be purchased for charity plus others that could be hidden.It has been such an amazing time with everyone joining in painting rocks and hiding around Duston to find and then re hide. We would like to thank her and all the other artists that help raise this amount for 3 local charities, ours being one. You can find the link to this and the rock painting on Face Book Page Love on the Rocks Duston and will be able to see all the fabulous rocks and updates.

We hope you all have had a wonderful Summer and enjoyed your holidays and are looking forward to the Autumn and events that this season brings.

Much  Love to you from us all



Hi Everyone,

Today we had an Easter Party Disco for the children. It was so much fun.  We have to say a big thank you  to Paul and Tracy Odams  for entertaining the children ( and Parents lol ) with music, games and dancing. It was lovely to meet up with old members of the group and new ones that joined us  with their families.
A big thank you to all the awesome people that donated towards food and Easter eggs for all the children to take home ........ a lot of chocolate is going to be eaten . Your generosity is really wonderful and without you all helping us it wouldn't happen.
Posting  few pictures of our fun time. xxxx



Hi Everyone,

Well looking out the window  and lots of snow once again but nice and snug inside and great opportunity to catch up with the charity news.
We are well into the swing of organising an Easter Disco Party for the children of Megan's Flutterby Fund Group. The invites went out a few weeks ago and plans began.

The party is being held on April 8th at St Crispins Club, Duston.

We have so many people to thank for all their generosity of donations of Easter Eggs for the children to each have one to take home. Also to those individuals that have given us donations of money towards any costs. A big thank you to Paul Odams who is doing the Disco and games for the entertainment .Top Man Paul x

On Saturday 8th March we attended St Francis Table Top sale and raised £65 plus the money donations have totalled to another £65 plus funds raised at November Table top £40 Total £170.
Out of this we have booked the venue and buffet and have a little left over for sundries.

We would like to say a Very Big Thank you to the people below for all your donations of Easter Eggs and monies to help towards this event.

Melvyn & Judy Arnsby         Mark Elliott , Ivor & Tracy Stead,
Zoe Arnsby                            Liz Leaman  & Linda Smith
Mick Laugharne                    Chris Crouch & Janice Crane
Diane Tapp                            Jenny Brookes

It really is going to be a super event for the children and all of us so looking forward to it and we will be taking lots of photos on the day.

Once again many many thanks for your support you are amazing xxxx

Gisela, Anna and Megan's Flutterby Fund 




Hi Everyone,

It's that time of the year again, Christmas  nearly here and all the excitement of children loving the putting up of the tree and decorations and the build up to Santa's arrival on Christmas Eve.

We would like to wish you all


A Big Thank You to everyone that has supported us through the year with sponsored events and those that have given us donations., without your continued support we could not do it.

We hope that you all have the most amazing Christmas and all the children stay healthy to enjoy all the celebrations.

We will be posting  News in the New Year as we are hoping to set up an event for the children in the New Year as a get together and bit of fun I will post details nearer the time.

So all that is left is to again Thank you all and wish you all  A Very Happy Christmas  from all of us at the Fund xxxxxx 


Summer Holidays AND Now Autumn

Hi Everyone,

We hope that you have all had a wonderful Summer and those that have been away on holiday have had lots of fun and enjoyed it all.
We have to mention a thank you to Helen Wingfield who ran the Milton Keynes half marathon to raise funds for us. Many thanks Helen and I have heard from her mum that she and he  husband are expecting their first baby in the New Year. Such wonderful news congratulations to you both.

Summer has been quiet as usual but we have had enquires about equipment and awaiting feed back from professionals etc. which all takes a little time.

We now have a group on Face Book called "The Attic Emporium" which has a number of things For Sale that have been donated to us or are all Handmade crafts. There will be more items for sale as we build up towards Christmas and we have already got tables booked for the November
 Table Top / Craft Event  at St Francis Church will post later for that event date etc.

I hope all the children have had a lovely first day back to school and all those changing schools or just starting good luck and really happy times ahead.
Sending lots of healing love to any of the children that are sick at this time or undergoing treatment we send all our thoughts to you and your family and get well soons.

With all our Best Wishes

All of us at Megan's Fund  xxx



Hi Everyone,

We would just like to wish Everyone a Happy Easter and hope you all have a lovely time over the Easter weekend.

Just a couple of updates over the passed couple of weeks. Another request has been completed this week which always makes us smile.

Thank you for the message and picture from the family. WE are happy that we could be of help xxx

Alfie, Ben and I would like to say a massive thank you for the wonderful chair and all your help and advice. You are truly wonderful and have made a little boy very happy and comfortable. We can not thank you enough! Xxx

Enjoy your Easter everyone and hope you get lots of eggs xxxxxx




                                          JULIE EVANS RAN THE BATH 1/2 MARATHON
                                         AND RAISED £358.75 ON SUNDAY 12TH MARCH

Hi Everyone on Sunday 12th March 2017 Julie Evans  ran the Bath half marathon to raise money for Megan's Flutterby Fund . WE would like to say a huge thank you for her Fantastic effort and support raising £358.75.
All this fund raising support helps us to continue helping the children in our community.
Thank you also to the people that sponsored her ........Awesome .


New Year Update Of the Fund

Hi Everyone,

We are now into the New Year and hope that it will be a really Happy and Healthy one for us all. I know this season can be really tough on our little ones with all the nasty colds and viruses and already have had some poorly, so we send all get well wishes and hugs and speedy recoveries.
We also have some that have upcoming surgeries and will keep updated with those as they happen.

A massive Thank you to everyone that sent donations to us over the Christmas period a total sum of  £105 plus the sale of our Nutcracker Soldier £100  and  £75 Attic Sales Total £280  in December which is brilliant.

In  2016 we fulfilled 6 requests from Pulmolink oxymeter, 2 large bubble tubes, weighted blanket,tablet and help towards some communal wind chimes at JGS  total expenditure £2108.05 and fund raising and donations for the year £1397.45 which we think is super for a small local charity and still have a nice sum to bring forward for this year.

We hope to get some events sorted out through this year that maybe some of you can join us in and will post as and when we arrange them all.

Once again thank you to all those that continually support Megan's Fund and all our best wishes for the year ahead.

Gisela ,Anna and Trustees