MEGAN'S FLUTTERBY FUND

WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .

We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.

Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the child's ability, but can make such a difference to the child's everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as an ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.

We hope you like our Blog and please feel free to post your comments and Thank you for taking the time to look .

Gisela Bell & Anna Bell Now Lyman

CHARITY TAX REGISTERED.















19/08/2019

MARKS & SPENCERS ADAPTIVE CLOTHING

My Sunday afternoon and Monday morning  18th 19th August 2019

Well what can I say!!!Less than a year into their Launch of adaptive clothing for the children my thoughts.

It really isn't a success story if you are trying to get hold of any.

I have spent the better part of a whole evening and morning trying and speaking to someone at M&S head office to get hold of a number of items to full fill a request to Megan's Flutterby Fund for a small child adaptive clothing.

Was I successful....NO  there is no stock on line or in stores to fit 2/3 year 3/4year old. Plus the situation is they have no idea when stock will come in or can guarantee it will come in.
How can a company promote a service and get praised for it when they actually can't or don't keep up their stocks to be able to supply the consumer with the goods. It's totally ludicrous that they allow this situation to occur.
Well Marks and Spencer you have a nil point score from me.
You need to get your stock control house in order and be able to supply what you  promote for Special Needs children
Your very happy to take all the social media and advertising praise on this venture but you are falling very short of the mark on this!!!!

Please share maybe it will help with them actually supplying what they claim to be doing.

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