WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .

We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.
Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the childs ability, but can make such a difference to the childs everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as a ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.

We hope you like our Blog and please feel free to post your comments and Thankyou for taking the time to look .

Gisela & Anna Bell x


NCC Graduation Day

Today we have spent the morning with NCS PINK TEAM at their Graduation at Northampton University.
This group of inspiring young people have been raising money for Megan's Flutterby Fund and have handed a cheque over to us today for over £10...00.
It was wonderful to be invited to share their celebration of what they have gained and all the hard work they have been doing to bring so much into all our community.
We would like to thank them all and Rumbi, their team leader, their parents ,carers and everyone that has supported them through this learning journey.
They are the most wonderful group of young people and it is a great pleasure to have met them all and also our continued contact with them in the future.
Of course our Pink team is the" bees knees" to us but the morning was also about many more young people and all they had been doing to bring the very best to all our communities.
I came away thinking of what an amazing project this is and how our young people do really have so much to contribute to our community lives and how wonderful that they have given so much of their time to give so much to others. Just awesome.

No comments: