"MEGAN'S FLUTTERBY FUND": AUTUMN UPDATE 2018

MEGAN'S FLUTTERBY FUND

WELCOME " MEGAN'S FLUTTERBY FUND" SITE has been set up in memory of Megan Bell who died aged 13 years of a life limiting condition. Megan was profoundly disabled and during her lifetime we had to fund raise to obtain lots of specialized equipment and other things such as switches to activate toys and computer. The purchase of musical instruments ,which the children find so exciting and stimulating. Bean bags, mats, lights, mirrors the list is endless. A lot of this equipment to enrich her life was not supplied by the Health Service as they do not fund for lots of these things. We too had help from our local community, friends and wonderful people who helped us do this .

We now have set out to help other families with children like Megan in her memory to have these things through her Fund. Our aim is to raise funds to help special needs and life limited condition children in our local community to be able to have as many of these things that we are able to help towards or purchase for.

Being specialized equipment can cost from as little as £30 for a switch to hundreds of pounds depending on the child's ability, but can make such a difference to the child's everyday quality of life and the joy and achievement it can bring by being independent for those short moments . Fibre Optic lights and musical instruments such as an ocean drum again bring such enjoyment but cost around a £1000 for lights and £80+ for the drum.

We hope you like our Blog and please feel free to post your comments and Thank you for taking the time to look .

Gisela Bell & Anna Bell Now Lyman

CHARITY TAX REGISTERED.

25/11/2018

AUTUMN UPDATE 2018

Hi Everyone,

Well the summer is over and now into the autumn months and soon winter. Only 4 weeks to Christmas so lots of preparations and very quickly it will be lots of excited children waiting for that magical day when Santa arrives.

It was a sad time for us all here at the fund with the passing of Natalie one of our trustees. Natalie's family requested the donations made at her funeral were passed on to Megan's Fund which totalled to £251.00 which we thank them for. We all know that Natalie would be happy about that. We will miss her so much .She was on board with us at the very beginning. God Bless Nat you will always be with us.

We have some more people to thank for donations made.

Firstly THE LADIES AT SUNDAY TEAS AT ST LUKES DUSTON who presented us with a cheque for £100. Many thanks for your support ladies so kind of you to think of us.X

Next we would like to thank our ALI HARPER AND ALL THE MEMBERS OF GLOBAL HYDRANENCEPHALY FOUNDATION USA. They awarded us The ^ Brayden Alexander ^ Memorial Grant for Volunteerism of $500. We have been friends and members of the group for many years as Megan had this condition and found the support and information invaluable to us. Despite the hundreds of miles that separate us all firm friendships and love have been forge to span across the years .One wonderful thing that the internet can take some credit for.
Thank you to Our Hydranencephaly Family for your support. It's amazing that our special Angels memories go on to help other children and families Love and hugs to you all at the foundation and to all the families

Ali and Brayden.

Many thanks to Everyone Much Love from Everyone at M.F.F. xxx